EAMAS (European Association Friends of McCune Albright Syndrome) was founded in 1997 for all those who want to share and broaden the knowledge about McCune Albright Syndrome and other rare genetic diseases.The association is committed to organising and divulging information known about the disease in a way which provides a useful resource for patients and their families. Members of the medical profession can find useful information and references on this website, which should help them in their work. The work of the Association is carried out by volunteers who work to raise awareness, increase scientific research and give support and assistance to patients and their families.
This website aims to:
Help patients and their families have contact with others in a similar situation and to be able to share their experienceswith each other.
Help doctors by supplying names of colleagues, bibliographies, and other sources of useful information.
Be a point of reference for people who for whatever reason are involved with McCune Albright Syndrome and other rare genetic diseases.
Be a virtual network of patients, doctors and families, to give an international profile to the diffusion of McCune Albright Syndrome and other rare genetic diseases.
